Research groups
Colleges
Dr. Ali Kay
- Researcher, MRC WIMM; Research Fellow (JRF), Oxford Centre for Personalised Medicine
- Research areas: genetics, genomics & genetic counselling; psychology; applying social science approaches to health and medicine; qualitative research; PPIE.
Ali is a mixed methods researcher, currently applying qualitative methodologies to research questions in reproductive personalised medicine. Her recent research is informed by medical sociology (mentors: Nina Hallowell & Lisa Hinton); her postgraduate training in genomic counselling and psychology, and ten years' experience in patient and public involvement in research. Her earlier postdoc career (applying social science perspectives in history) was recognised with fellowship of the Royal Historical Society (FRHistS). She continues to be interested in economic and social issues but primarily in relation to family, health and consumer genomics.
Grants: NIHR Research for Patient Benefit grant (co-investigator with CI Prof. Anne Goriely) - implications of personalising pregnancy risk information.
Other: Rare disease patient advocacy. Ali sits on a number of medical research charity grant committees as a lived experience expert.
Doctorate (DPhil). Nuffield College, Oxford
MSc: Genetic & Genomic Counselling, Cardiff University; MSc Psychology, UCLan
MA (Hons) University of Edinburgh; PGCE (DMU)
Recent publications
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Professionals' views on providing personalized recurrence risks for de novo mutations: Implications for genetic counseling
Journal article
Kay AC. et al, (2024), Journal of Genetic Counseling
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Providing recurrence risk counselling for parents after diagnosis of a serious genetic condition caused by an apparently de novo mutation in their child: a qualitative investigation of the PREGCARE strategy with UK clinical genetics practitioners.
Journal article
Kay AC. et al, (2023), J Med Genet, 60, 925 - 931
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Adoptees' views and experiences of direct-to-consumer (DTC) genomic testing: an exploratory interview study from the UK.
Journal article
Kay AC. and Taverner NV., (2023), J Community Genet, 14, 149 - 162