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BTRU researchers Dr Lee Aiyegbusi and Prof Melanie Calvert have developed new resources for the involvement of patients and members of the public in research. Their research, published in Nature Medicine, focused on the lived experiences of individuals affected by Long Covid who were participating in the Therapies for Long COVID in non-hospitalised individuals (TLC) study.
The findings covered the impacts and outcomes of patient and public involvement and engagement (PPIE) throughout all stages of research, from the development of a grant application and study set-up to study design, the co-creation of data-gathering tools and interventions, and the dissemination of findings.
This research enabled the design of new tools to guide the planning, implementation and evaluation of projects that work with patient and public groups. The tools draw on best practice and enable researchers to follow checklists to ensure that all aspects of PPIE work are incorporated into research design. Read more here.